Qualitative observational study
What is the qualitative observational study?
We carried out an observational study to better understand the determinants of treatment adherence and persistence in neovascular age-related macular degeneration (nAMD).
Find out more about this initiative and explore the results. Or click below to read the full results in our published article or download a helpful PDF summary of the study:
What was the aim of this initiative?
Understand emotions and experiences of patients with nAMD associated with treatment
Explore patient-reported factors influencing adherence and persistence
Inform the development of relevant and meaningful interventions to improve patient care and management
How was the study conducted?
Patient and physician interviews were carried out.
Patients were asked about:
The information that they received from their treating physician
Whether the results of treatment matched their expectations
How nAMD impacts them
Their attitudes to attending treatment and monitoring visits
Physicians were asked about:
Their patients’ medical history, knowledge about nAMD, and attitudes/behavior whilst receiving treatment
Any patient support programs that they may have recommended to their patients
What were the results?
The results of this insightful study add to our understanding of patients’ emotions related to their experience of nAMD and its management, highlighting the varying experiences between individuals. The study concludes that the patients’ voice is vital when considering patient care and management, and how the nature and timing of interventions can improve the experience of living with and managing nAMD.