- Meet our Members
- Program Initiatives
- Resource Zone
Barometer Program Initiatives
What we’ve achieved so far
The barriers preventing optimal treatment of neovascular age-related macular degeneration (nAMD), diabetic retinopathy (DR), and diabetic macular edema (DME) are multifactorial and complex. Understanding the key drivers of poor treatment adherence and persistence from multiple perspectives is essential to support changes in behavior that can help to optimize patient outcomes.
To do this, the Barometer Leadership Coalition conducted a series of initiatives to gather evidence and to inform intervention strategies. Find out more about each of these initiatives below:
What barriers do patients, providers, and clinics face in managing nAMD?
To assess existing evidence and to identify knowledge and research gaps, we conducted a systematic literature review of factors affecting non-adherence to, and non-persistence with, intravitreal anti-VEGF therapy for nAMD.
What are the experiences and challenges of patients with nAMD?
We initiated a qualitative observational study to build a deeper understanding of the key patient- or
physician-specific drivers of low treatment adherence and persistence in nAMD.
How can we define and measure non-adherence and non-persistence in nAMD?
We developed and validated standardized definitions for (non-)adherence/persistence in the context of nAMD treatment. This addressed one of the key gaps identified by our systematic literature review.
What opportunities exist to improve outcomes in nAMD and DME worldwide?
We designed a global survey to investigate the challenges associated with clinical management of nAMD, DR, and DME. This survey identified opportunities and practical interventions to help improve outcomes for patients.
The HCP Barometer Program – a new initiative!
Published literature shows high rates of poor mental well-being and stress among ophthalmologists; however, the impact of this on patients, and the unmet needs of healthcare professionals (HCPs), are not well investigated. This novel venture driven by our group of experts will put the needs of HCPs into focus, to uncover and advocate for changes to improve their well-being, protecting future generations of HCPs so that they can deliver the best possible patient care.